Wednesday, February 25, 2009

Happy Birthday Kyle!


Kyle celebrated his 11th birthday this month. He had 2 friends come over, and Dave took them to a movie. He got a backpacking backpack, so he's ready to go hiking with the 11 year old scouts! Kyle also earned his Webelos badge, and some achievement awards tonight. He is growing up too fast! He is such a responsible and mature young man. I know that I can trust him with anything I need. I'm so honored to be his mom. Kyle is the best older brother my other kids could ever ask for. He loves them, takes care of them and sets a wonderful example for them. When Toby was hospitalized in December, it was heartbreaking to hear him cry for his brother Kyle. He just wanted to go home to Kyle. It made us all cry when the boys would see each other, or have to say goodbye for the night. They are more than brothers, they are best friends.
And now, some previous birthday memories....


Steve Nash is one of Kyle's favorite NBA players :)


I think Kyle likes sports, don't you?!


This was such a fun birthday! We took this group of friends to the Phoenix Fire Station. They toured, dressed like firemen, pretended to drive the trucks, and sprayed the fire hose. The kids loved it! This birthday was not too long after Toby was diagnosed. You can see his cute little bald head :)


Kyle wasn't feeling well for this birthday :( Darcee and Daryl had planned such a fun day at an arcade with him, and he struggled to get through it and had a fever. Poor fella.



Yeah, I've made this dinosaur cake 4 times now I think.....and don't be surprised if it's DJ's next cake as well. Maybe he wont be as obsessed with dinosaurs as Kyle and Toby were (but I think it's genetic :)


This is probably one of my most favorite cakes that I've ever made. I used twinkies, junior mints, black licorice, fruit rollups, marshmallows and hohos! (well, and a cake, but duh, that's a given haha)

We've added a donation button through paypal on the blog, to accept donations to The Toby Wilson Leukemia Donation fund. You can read more about Toby on his caringbridge site, which is also posted on the sidebar.

Wednesday, February 11, 2009

Last Lumbar Puncture

Let me start this entry off on a good note. First, here are a few funny things my silly children have said and done...
I was sweeping the floor and lily and Toby were eating breakfast. Lily asked me to be careful and not get in her way of the TV. After a while Lily said "Mom, you're in my way!" I looked up at her confused as I stood in the kitchen no where near her line of vision to the TV. She paused, and then said "you're not blocking the tv mom, but you're blocking the chair, and I can't see those cups over there" hahahahaha sounds like someone is trying to pick a fight eh? :)

DJ is obsessed with putting things "on". He brings me Lily's shoes on a daily, sometimes hourly basis and wants me to put them on him. He'll put gloves (or socks...whatever he can find) on his hands. He'll find hats or headbands, snow boots... You name it, he wants it "on". So it was a perfect photo opp when he brought me Lily's dress up clothes!!! Toby and Lily joined in for the fun too :) DJ really does make a cute girl (don't tell him I said that!)

My sweet little Derek now says "Hold you". I love it when kids say that!!!

The kids were being very cute the other day. They set up a stool and put a blanket over it and were standing on either side of it.....playing fishing. One would throw a string over and the other would tie on a surprise! It was cute because Toby said to Lily "what have you always wanted that you don't have", but then tells her it needs to be something we already own lol Lily then gave Toby scotch tape as a present hahaha

We went out to eat last night at a little ma and pa burger joint. Toby was on steroids still, and they often affect his taste buds and mood. Last night he was tired - too tired. He ordered his food and was very excited about it. A hot dog, corn dog, tater tots mmmmm. After taking a bite of each, he wasn't pleased with anything. He sat for a while and then said "Can I just order a bed?" :)

Kyle just particpated in the Science Fair at school. He got a participation ribbon and then also got another ribbon for understanding his project so well and being able to explain it to people. I love having a child who just "gets it", and is so smart (but I hate it when he corrects my spelling). lol


So now for Toby's last back poke.....goodbye Leukemia! Toby went to his last appointment in a great mood, knowing it would be his last (at least for chemo and back pokes.....we still have 5 years of blood tests, but that'll be a piece of cake!). I got some pictures of his ritual check in and port accessing. I also got some video of his lumbar puncture. Sadistic of me, but I was hoping the video would show the shaking of his eyes and the pain in his face when the needle went in, but it didn't, and it's probably a good thing it didn't. Toby has been amazing with all of this and I'm thankful for his strength. Some of the staff at PCMC made him a poster, gave him gifts, and sung 'Happy off therapy". Toby's prognosis is good. I have feared ending chemo, because the thought of relapse scares me to death. The Dr. told me that my fears are normal, but not to worry. The chances of it coming back are about 10%. At first that number gave me comfort, but then I realized the odds of Toby getting Leukemia in the first place, and my fears dug in again. But the Dr. assured me.....even if it does come back, we can deal with it. We've made it day by day thus far, so I know we can face whatever else comes our way.

Clinic Check in


Port Access (He wrapped his shirt on his head and pretended to meditate lol) His port access doesn't usually produce tears, but he opted for no numbing cream and then the nurse missed and had to access him twice :( poor guy.


Our Fab doc, Dr. Fluchel and the wonderful aid who always gives Toby Cheetos :)


Happy Moments....especially when we were ready to head home.

I am going to add some video to youtube, but it won't be all smiles so viewer beware :) The link to our youtubes is on the sidebar.